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iSpine Discuss Please post your myelogram experiences in the Main forums forums; Had CT myleo on Monday, When I asked doctor about complications, side effects etc. He said menigitis but rare, and ...

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Old 01-29-2009, 03:39 PM
Cheryl's Avatar
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Default in myleogram hell now

Had CT myleo on Monday,

When I asked doctor about complications, side effects etc. He said menigitis but rare, and shrugged his shoulder and said the word headache as if to say it would be no big deal. I have to admit that I had read enough to know otherwise but decided to have the procedure anyway.

Headache developed by Tuesday morning.

Its so severe in the am that I have to crawl to the bathroom. Can't take my puppy for a walk, need my husband to stay home to watch the kids.
Had to cancel my 40th bday party on Saturday which a friend put a lot of time and money into. Not that any of this matters - just explaining the severity

Headache subsides a bit my mid afternoon.

Nurse said its my choice to come in for blood patch or endure.

Not sure what to do, I can't take anything worse.

I am so over being a spine patient. Its neverending.
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44 Year Old, mom of 3
DDD - l4-s1- woke up Feb 2005 and couldn't walk
Tried PT, Injections, Accupuncture, drugs, etc.
2 level Prodisc ADR L4-S1, Feb. 18, 2008 Dr. Bertagnoli - Straubing, Germany - SUCCESS -

Now I struggle with Neck Pain likely c5-7
PT, injections, rhizotomy.......MRI and CT Myleo not consistent with pain symptoms, waiting that out, keeping my passport valid
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Old 01-30-2009, 06:26 PM
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Justin,
Good luck on your myelogram on Friday. I sincerely hope you have no side effects. I've had 3 and 2 went well and the other I had to get a blood patch and that took care of the issues.
Best wishes,
Linda
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Old 01-31-2009, 04:14 PM
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Thanks Bob and Linda. Myelogram went well yesterday (no grenades!). I have a very minor headache today. I've been drinking plenty of fluids... I should have the dictated report on Monday.

I hope you feel better Cheryl.

Quote:
Originally Posted by Cheryl View Post
Had CT myleo on Monday,

When I asked doctor about complications, side effects etc. He said menigitis but rare, and shrugged his shoulder and said the word headache as if to say it would be no big deal. I have to admit that I had read enough to know otherwise but decided to have the procedure anyway.

Headache developed by Tuesday morning.

Its so severe in the am that I have to crawl to the bathroom. Can't take my puppy for a walk, need my husband to stay home to watch the kids.
Had to cancel my 40th bday party on Saturday which a friend put a lot of time and money into. Not that any of this matters - just explaining the severity

Headache subsides a bit my mid afternoon.

Nurse said its my choice to come in for blood patch or endure.

Not sure what to do, I can't take anything worse.

I am so over being a spine patient. Its neverending.
__________________
-Justin
1994 Football Injury
1997 Snow Skiing Injury
Laminotomy L4/L5 (3.7.97--17 years old)
1999 & 2003 MVA (not at fault both times)
Grade V Tears L4/L5 & L5/L6
2-Level ProDisc® L4/L5 & L5/L6* *lumbosacral transitional vertebra (11.15.03--23 years old)
Dr. Rudolf Bertagnoli -- dr-bertagnoli.com
Pain-free for the last 4.5 yrs.
5.14.09 DSS with Dr. B.
I'm here to help. Only checking PMs currently.
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Old 01-31-2009, 04:46 PM
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Justin:

I'm interested in what the report has to say about your troubles that you have been having. I also had a headache from a previous Myelogram. They had me in the hospital overnight, for the procedure, and had my bed at an angle to keep it from going to my brain. The next morning, I told them what a waste of a hospital bed it was and, they kept me awake all night . As soon as I stood up, it felt like someone had hit my head with a sledgehammer. Ah, the fun stuff we get to experience.

I hope you are well. I am getting ready to bring the patient home.

Terry Newton
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1980 ruptured L4-L5
1988 ruptured SI-L5
1990 ruptured C5-C6
1994 ruptured C6-C7
1995 Hemi-Laminectomy C5-C6, C6-C7 Mayo Clinic
Bicycle Accident 2004
MRI, EMG, Facet Injections, Epidural Blocks, Lumbar Discogram.
Stenum Hospital Surgery November 4, 2006
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Last edited by Terry Allen Blackburn; 01-31-2009 at 04:49 PM.
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Old 02-02-2009, 11:21 PM
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I've had 2 CT myelograms. No serious problems after them, but the first one was a very painful procedure. It was performed by a resident who had a very difficult time getting the needle past all of my scar tissue, bone spurs and hardware. It took him 3 separate attempts and 3 needles. I was about as miserable as I have ever been for almost an hour. Luckily, no headache afterwards. I do remember being warned of the possible dangers/side effects. The nurse I had was wonderful! She advised me to drink caffeinated beverages and keep my head down for 8 hours post CT. About a year later, when my dr. wanted another one....I called ahead and insisted that I needed an experienced dr. No more residents for my poor spine! They got to practice on me once...but not twice! The second CT myelogram was a piece of cake compared to the first one...and again....no headache and lots of caffeine and rest afterwards.
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12/29/08- 3 level ADR Prodisc C in Seattle
12/21/07-Revision surgery, fusion L4/5 L5-S1
1975-scoliosis surgery,Harrington Rods, fused T2 to L4
Felt great in 20's and 30's....late 30's started having chronic neck and lower back pain. By 40 pain worsened enough to begin seeking surgical solutions.

ADR surgery much easier recovery than fusion!
This site has been a great source of information for me! I would be happy to help anyone who has questions.
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Old 02-05-2009, 02:50 AM
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Hey Terry,

I had a minor headache all weekend. Then, on Monday morning I woke up to the pleasant feeling of excruciating pain in my low back and legs. I got a dose pack from my PM doc on Tuesday, and I still feel awful. I just want to curl up in a ball and cry.

I'm getting a massage to help "knock" some of this out of my system. I found a really great deep tissue masseuse that is the best I've ever had -- even better than Bora Bora!

I'm praying for relief...I feel so debilitated right now, and, of course, I have a ton of crap going on. arrghhhh.

PS: how is your wife?

Quote:
Originally Posted by Terry Allen Blackburn View Post
Justin:

I'm interested in what the report has to say about your troubles that you have been having. I also had a headache from a previous Myelogram. They had me in the hospital overnight, for the procedure, and had my bed at an angle to keep it from going to my brain. The next morning, I told them what a waste of a hospital bed it was and, they kept me awake all night . As soon as I stood up, it felt like someone had hit my head with a sledgehammer. Ah, the fun stuff we get to experience.

I hope you are well. I am getting ready to bring the patient home.

Terry Newton
__________________
-Justin
1994 Football Injury
1997 Snow Skiing Injury
Laminotomy L4/L5 (3.7.97--17 years old)
1999 & 2003 MVA (not at fault both times)
Grade V Tears L4/L5 & L5/L6
2-Level ProDisc® L4/L5 & L5/L6* *lumbosacral transitional vertebra (11.15.03--23 years old)
Dr. Rudolf Bertagnoli -- dr-bertagnoli.com
Pain-free for the last 4.5 yrs.
5.14.09 DSS with Dr. B.
I'm here to help. Only checking PMs currently.
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Old 02-05-2009, 09:51 AM
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Justin,

Sometimes those hand grenades have delayed fuses. I hope it subsides soon. That was one of those intense pains that made me wonder if something more serious was wrong. I even had a colonoscopy (I made the gastro doc buy me dinner and a movie first) to make sure it wasn't an intestinal issue.

Bob
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04/06 L5/S1 Rupture
05/06 MRI shows DDD @ L2-S1
06/06 Diskectomy/ Laminotomy L5/S1
04/07 Recurrent Disc Surgery L5/S1
3 Ortho and 1 Neuro Surgeon, 3 MRIs, 1 EGM, 1 Myleogram & 11 EDIs later:
03/27/09 Maverick ADR at L4/L5 & L5/S1
03/27/09 The Lord and Dr. Ritter-Lang returned my life to me.
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Old 02-05-2009, 10:00 PM
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Justin,

You're hoping your head won't provide you with a death wish, only to have the pain explode in your back. You can't win! I hope the massage works. After my 3 level, I was told no deep tissue massage in that area.

Wishing you pain free days... and nights! Dale
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Old 02-05-2009, 11:24 PM
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Justin,
I am so sorry that you are in pain from the myelogram. I also had to take a medrol pack and it really didn't work right away, it took about a week for the full effect so hang there. I hope that the test will let you know what is wrong. You may have the report by now and I hope it is not too serious. I wish for the best for you. I am so scared and having my surgery this Tuesday. Please let us know what is going on with you so we can send lots of E-hugs over.
Phylly
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Fall on tailbone causing sciatica and back pain April 05
Conservative Treatment and PM for 2 years
Discogram concordant pain @L4-S1 Aug. 07
Prodisc ADR's at L4-S1 November 2007
Foraminotomy July 08 for Sciatica
Continued problems and back pain worsened
Prodiscs removed and discs fused at L4-S1 Feb. 09
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