I'm Lyssie (fused T2-L4)

[lyssie]

Thank you both so much for the warm welcome.

Golly, reading through everybody's signatures... You've all really been through a really lot

Today will be a tiring day as my back has woken me up at 5:30am - not cool!!

I honestly don't like that these injections have made mainly pain worse plus severe spasticity in buttocks and legs! Which is making it so effortful to walk at all. I think I'm going to be back on the crutches to be honest I just find that taking the pressure off my spine helps. But altogether I am pretty weak which I think is due to all but one of the thoracic spine being fused and my shoulder blades and arms being a bit helpless.

But! I wouldn't compare that to the trouble my SIJ's and lumbar/sacral spine give me.

They did mention performing a bi-lateral sacro-iliac joint fusion. But I'm being referred to their (Stanmore's) pain team. I was local with my pain consultant but she turned out to be not very nice and discharged me. I'm having physiotherapy, which is lying on the side at the moment whilst things are so bad. She's a specialist pain physiotherapist and a lovely one at that

Thank you so much for introducing yourselves by the way, Lyssie