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iSpine Discuss SCS - Horrible Pain Everything went wrong! in the Main forums forums; Please excuse my typo and grammar....in excruciating pain. On March 22, 2010 at 10:30 a.m. I went ...

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Old 04-06-2010, 04:21 AM
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Default SCS - Horrible Pain Everything went wrong!

Please excuse my typo and grammar....in excruciating pain. On March 22, 2010 at 10:30 a.m. I went in for the start of my SCS Spinal Cord Stimulator trial surgery. Surgery at 12:30 p.m. and ended somewhere around 3:00 p.m. I awoke from the surgery with some discomfort as expected but some suttle surprises. To my dismay the orthopedic surgeon had installed the permanent SCS paddles which were around T8/T9. Since I have 4 younger children at home it was decided to keep me overnight in the hospital to give me some quite time to start the healing process. The surgeon stated the surgery went fairly well but he had to make a few holes in my spine for the paddle to fit properly.Around 9:00 PM that night I started feeling a good bit of discomfort in my back which the nurses said was normal and they administered some IV pain meds. Around 2:00 in the morning is when things went all wrong. I woke up with excruciating pain in my middle back and had a HORRIBLE banding of pain that went from near where the paddles were and wrapped around my middle section. It was like a horrible hot knife that was being stabbed around my ribs. The pain was 15 to 20 plus on a 10 pain scale. It was so bad that I was banging my head against the wall, pacing from wall to wall and could not get comfortable. The pain was so bad that they called the on call surgeon who said to give more IV pain meds. About an hour or two later I was able to lay down on a hard couch type bed in the recovery from and with some Zanex I got about an hour or two of broken sleep. Next morning pain had subsided a bit but my heart rate was over 145 BPS and they could not get it down. After lots of pain meds they were able to get it down around 110 BPS. Next day pain was a bit better so they discharged me from the hospital. I still had horrible pain banding around my chest, lost feeling in my left side, abdomen, and my testicles & groin. Loss off feeling in groin causued me to have to urinate by gravity since I could not feel the urine flow. Pain got worse at home that night and I started urinating on myself and hand not had a bowel movement in two days. I got about 2 hours of broken sleep that night only getting a bit of comformt on a hard couch in the living room. Around 6:00 AM I woke up with the most excruciating pain I have ever felt in my life….pain banding around my ribs and horrible pain in my t-spine area of my back. I tried to get up off the couch and collapsed to the floor in pain. Could not move or get up from this excruciating pain banding from the middle of my back around my chest, urinating on myself and still hand not passed a bowel nor felt a need to have a bowel movement. Paramedics were called, Blood Pressure was 186/116 due to pain. My wife said I was screaming louder than she thought was humanly possible. Was taken to the hospital by paramedics with morphine drip to control the screaming/pain. Surgeon ordered a CT Mylogram with die. Was in so much pain they could not get me to lay flat on the table. Docs decided to put me on constant IV Morphine and then Dilaudid. I was giving so much pain meds I do not recall many of the events (My wife is dictating). Surgeons took me in for emergency surgery. Performed double laminectomy at the area where the ortho placed the SCS Leads. I still do no know whey but surgeon is being very reluctant to share information. He removed to huge pieces of bone from around T7 thru T9 and also for some reason went ahead and installed the permanent SCS battery, etc. I woke up with TOTAL Amnesia which they attribute to the incredible mount of pain and stress that my body had been subject to. Still no feeling in my groin, scrotum, lower abdomen, and left side. A day or two later they discharged me from the hospital even though I was still having the bad banding of pain from mid back around ribs in front. Next day pain got so bad (Pain banding again) that I went in to see my pain doc. He took one look at me and said that there was something horribly wrong and due to me urinating on myself and no bowel movement for over a week that he thought I was in spinal cord compression distress. Hospital only 10 minutes away but he demanded that I be taken by ambulance to hospital. Admitted again, and was placed under General Anesthesia for CT Mylogram (due to my pain and inability to lye flat). Ct Mylogram showed some flattening of my spinal cord now and neuro states nerve damage. How could this have gone so horribly wrong and the ortho wont tell us what went wrong. States that the pain banding may last for a few years and may never go away. I feel so guilty for wanting to get rid of the leg pain and now these horrible complications have made things so much worse. I don't even know how to pick up the pieces from here and am scared to death of where to turn. I do have an a appointment with antother neuro this week but I just cannot even begin to think when or if anything can be done from here. I am an absolutle mess both in pain and emotionally a wreck.
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Old 04-07-2010, 05:13 AM
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kajari,

Truly you are living a nightmare. It's difficult to read what you write. You can count on the Ortho to never fess up, even if what he knows his information would help your other doctors treat you. Go up to Louisville to a neurosurgeon named Wayne Villaneuva. See if your wife can find him on the internet. I hope your situation improves.
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Old 04-08-2010, 03:01 PM
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Dear Kajari,
I am so, so sorry for what you are going through. We put our trust in surgeons, and when things go wrong we are often left completely on our own to solve the problems. Not fair.

I hope you can find some good help in your new referral. If not, keep on looking.
Good luck.
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Old 04-09-2010, 12:24 PM
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Kajari,
Having had a failed surgery that yielded miserable and even horriblly painful results for years afterwards (5) I can relate to where your head is at right now even if my results were nowhere as bad as yours.

I don't think you will get answers from your surgeon.. I'm not sure he can tell you why he did the permanent implant vs. trial except that he made a mistake. Just reading about touching that thoracic area makes me think there could be or would be swelling and spasms and involement around spinal nerves at involved levels perhaps other things that could be causing that banding feeling...

Make sure you have the best opinions available to you and best PM you can find to help you thru this and take it second by second and minute by minute in terms of the pain and getting thru. Don't beat yourself up because you went in for a trial and came out with something you didn't expect so even tho you put yourself there you did not get what you expected.

I don't know whether you should consult with an attorney or not altho I wouldn't rule that out either re obtaining medical records and the surgeons actions. Then again I'm not sure what the consent stated re the trial such as if the surgeon was given permission to do further work based on findings once he went in....

Any which way I feel your pain and emotional status and really wish you the absolute best with your ongoing recovery from all this. Hang in there and vent away.

Last edited by Maria; 04-09-2010 at 12:36 PM.
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Old 04-12-2010, 01:49 AM
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kajari, thanks for taking the time to talk to me today. This is absolutely one of the worst horror stories I've ever heard. I'm so sorry that you and your family must endure this and I hope to hear that you recover well.

Thanks for posting here. Everyone must understand that even the procedures that seem relatively benign still come with substantial risks.

All the best,

Mark
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Old 04-12-2010, 02:51 AM
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Hi Kajari

I am so sad to read your story, I pray you get some relief soon.

Be strong I will pray for you

All The Best

Gil
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Old 04-14-2010, 04:29 AM
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Default when I posted earlier

I didn't mean that I thought you surely had reason to seek legal representation rather that if you weren't able to get your records and really wanted answers at least in terms of your records that might be an avenue of recourse.

Unfortunately spine surgery comes with no guarantees. Signing consents prior to surgery we usually give the surgeon the right to make broader decisions based on findings once inside and act upon this so not sure if this is what happened with your case "or what"...

I hope whatever was done for whatever reason it will stop hurting so much and continue not to hurt so much or at all if that's possible. Good luck and please keep us posted.
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Old 04-15-2010, 06:03 AM
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Kajari... any progress? I'm anxious to hear what the doc and reports have to say... Mark
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2001 L5-S1 Micro-d/lami
2002 L4-S1 Charite' ADR - SUCCESS!
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Summer 2009, more bad thoracic discs!
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Old 04-25-2010, 05:29 PM
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Angry Post Laminectomy and SCS - Getting Worse

It has been a few weeks since my last post about the complications I am having from the Spinal Cord Stimulator and Multi-Level full Laminectomy. I was in high hopes that the crippling pain that I am now experiencing from the Laminectomy would be getting better with each passing day. WELL I WAS WRONG! I had a week where the pain (banding pain around my chest and thoracsic pain) did not get any worse or better and I thought that I might be able to deal with this type of pain with the help of medications. Over the past week the pain has become increasingly worse and is sometimes worse than anything that I have felt so far. This past week I noticed a lot of pressure in my thoracsic spine where the laminectomy's were done. My wife looked at my back and said the swelling is really bad...it is very noticeable over the t-spine but also goes out to my shoulder blades. The banding pain around my chest has become unbearable and I have now started to have severe contractions from the area of the laminectomy around my chest. It feels like someone places a belt around this area and tightens it as hard as they possibly can. It is so bad that it takes me to my knees and takes the breath out of me. This comes with no warning and the pain is HORRIBLE! I do not think it is an infection since my temperature is normal. I have also noticed that my feet get REALLY cold and start to sweat...this happens even when I am laying down on the couch. It has become so bad that my wife has to assist me in getting into/out of the bath, she has to bathe me, help me in and out of my recliner, and has to pretty much help me with most of the simplest tasks that I was able to do before the surgery. I am also dropping things constantly. My wife has to get my medications for me now since I have dropped them on several occasions. I have also started getting quick "jolts" from the SCS. The jolts are really quick and happen in my lower back and middle back around my t-spine. The SCS is still doing a good job controlling the pain in my legs and is about 70 percent effective. Ice and Heat do not have any affect on the swelling in my thoracsic spine. I still have lots of numbness in my right side abdomen, numbness in my groin area, and do not have any feeling when I urinate. I have to concentrate really hard to get the urine to flow and it takes about 15 minutes to drain my bladder. My bowels are working as expected now.
I have an appointment this week with the Boston Scientific rep and the surgeon who performed the surgeries. Ever since I had the SCS surgery and the emergency laminectomy's there always seems to be a gut feeling that something is not right. I also forgot to mention that it feels like there are rocks/pebbles in my back where they did the laminectomy.
Is there anyone on ISPINE.ORG that has experienced anything like this? I am getting really worried since it has been 1 month since I had these surgical procedures and I would expect things to be getting better by now not getting worse like I am experiencing now.
Mark, I have been able to get copies of my medical records from the Hospital but not from the surgeon. I just received these so I am in the process of going through them. I did find out from the records that I have read so far that the Laminectomy was not at two levels but three and 1/2. It was done at T7, T8, T9 and half of T10. There is also conflicting info in the records. In one record he states that there was not a hematoma when he did the laminectomy but in another report it states the he had to evacuate a hematoma in the T-Spine. URGGG...still trying to get all the info and find out what really happenend during the emergency laminectomy. I still do not have a reason as to my he did the laminectomy or what went wrong to cause them to do the emergency laminectomy.

Take Care,
Greg

Take Care,
Kajari
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Old 04-25-2010, 10:34 PM
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Can you get to someone who specializes in thoracic surgery?
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2000 L4-5 Microdiscectomy/laminotomy
2001 L5-S1 Micro-d/lami
2002 L4-S1 Charite' ADR - SUCCESS!
2009 C3-C4, C5-C6-C7, T1-T2 ProDisc-C Nova
Summer 2009, more bad thoracic discs!
Life After Surgery Website
President: Global Patient Network, Inc.
Founder: www.iSpine.org
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