Michele,
Getting conflicting advice from doctors is more than confusing, especially when you're dealing with pain everyday. I'm sorry for your suffering and we all understand that you want a direct road to a fix and recovery.
I see you're in the UK. Do you have the financial ability to travel to Germany? Dr.s Zeegers and Bertagnoli are the foremost ADR surgeons and Dr. Baumbach, from what I've read, is the absolute best diagnostician.
You should get in touch with Mark (
www.globalpatientnetwork.com) who can put you in touch with these doctors as well as help you unwind this very crooked road.
Good luck, Dale