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Old 07-21-2013, 07:18 AM
Maria Maria is offline
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Join Date: Sep 2006
Posts: 2,405
Default re coccyx pain

I had episodes of bad coccyx pain prior to my first back surgery but then I had horrible coccyx pain after my 2nd discectomy failed (L4) though for some reason a few months after this surgery an MRI showed I had scar tissue at the S1 nerve root besides rebulging discs at L5 and L4.

Anyway for years I couldn't sit at all hardly. Besides having horrible coccyx pain I also had a deep burning pain in my glutes, my thighs, my calves and in the soles of my feet for years post failed surgery. I went on Elavil in '93 to help take the edge off the neuropathies and then in '98 I started taking Neurontin for the neuropathies.

The coccyx pain finally calmed down somewhere around 2001/02 when I started epidural steroid injections and started taking Methadone.

Now I rarely have that pain unless I sit too long but at least now I can sit an hour and sometimes 2 but still must move around a bit. But that certainly beats hardly being able to stand to sit to drive the street a short distance and feeling that pain every waking second.

I never considered a pain pump or scs because when I finally did start taking an oral opioid medication I have gotten by on a 10mg dose/day but I truly think the ESIs helped me a great deal (got them over a 10 year period of time about 3- 4x/year). Because the low dose opioid medication helped me SCS or a Pain Pump was not considered (per Pain Management protocol). I would not even trust a physician that would consider something more invasive without exhausting the more conservative routes first.

I know that pain must be pretty brutal. Good luck with whatever you do to alleviate although I'd try the conservative routes first before considering an implant. Maria

Last edited by Maria; 07-21-2013 at 07:25 AM.
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