James,
You have suffered for too long. There is help out there but you need to understand where your pain is coming from, what procedures might help, and the pros and cons for each. Only when you have full knowledge of all these things can you make an informed decision. But I will tell you that living like this is a waste of your time, your life.
You are not experiencing anything unique. Too many of us have walked in your shoes.
The first thing is for a consultation, actually second and third opinions too, with a top surgeon. You didn't mention where you live but perhaps someone can make a recommendation. We also don't know your insurance, financial status if your insurance won't cover and ADR surgery - not that this is your only option. So far, it seems you've only seen one doctor who recommends fusion, which I think you rightfully declined. You also said PT didn't work which might indicate that surgery is your only option. But you still need guidence.
All this is assuming you are willing to have a surgery. Some are not and would rather live with the pain regardless of the disability.
And as Maria, a good starting place is with Mark. He has helped so many of us.
Please tell us more about your circumstances and perhaps we can make some recommendations.
Good luck, Dale
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3 level Prodisc adr S1-L3, Oct 12, 2005
Dr. B in Bogen, Germany
Severe nerve damage in left leg, still working on it
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