Quote:
Originally Posted by ans
I am so sorry to hear of your plight. I wonder - and experts can chime in, if a myelogram would help identify your pain sources. Also, my pain management doctor acted as a physiatrist and diagnosed S-I joint pain that was just horrible and fortunately I responded well to an injection. Also, if you're truly feeling suicidal I hope that you see a psychiatrist and get a good Rx; personally I like Cymbalta which helps w/nerve pain too but there's some good stuff. In short, this utterly sucks but w/technology, it ain't over which is so easy for an outsider to say. My very best - Allan
P.S. I know that this ate your money but I can't help but wonder what Dr. Regan and Dr. Filler in Beverly Hills would say about you/your case.
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I get an SI joint injection on both sides on Wednesday along with my 3rd ganglion impar injection, so that should be a good diagnostic. I have been to only 2 pain med doctors and they both just suggest injections. If these injections do not help, then I don't know what to do. I have heard of a Mylogram, but not sure what it is. Nobody has suggested this. I know Cymbalta is new, but the thing with anti-depressants is, they cause me insomnia and give me too much energy and then I can't sleep at night. I used to take Lexapro which was good, but zero sleep, even if I took it in the morning.
I have never heard of Dr. Filler, but I have Dr. Regan. I hear they do revisions for patients who have had failed ADR. I am hoping my ADR is not a lost situation. I just went for a nice, long, hike, I just can't sit; very weird. I wish it was just the opposite. When I tell people I can't sit, they look at me oddly as it is rare. I am envious of people who can, which I know is strange.
I wonder if I should go see Dr. Regan. I am sure he would be interested in my case as I had a 3 level and one subsided and I still have pain. I would hate to get them out and get a fusion. That is not a gaurantee the pain would go away. I guess w/out knowing where the pain is coming from, I have no plan. There is a doctor in MN who is an SI joint specialist and does SI joint fusions, so if that is the issue, I will see him. There is also a coccyx specialist (although x-rays show it is fine) in NJ should that be the issue. I have a "sit-down" MRI on Tuesday. Maybe that might find something. I think since it is a nerve issue, neither x-ray or MRI will show this, right? Also, how does Cymbalta help with nerve pain? I owe my psychiatrist a visit and will ask him. Now I take Lunesta and Halcion to sleep. I used to take Seroquel, but I had to get off of it. Thanks for your feedback.