Yes...I have
For the first four years of my injury I wasn't getting proper pain controll and the docs at my HMO made it out like I was making it all up as they didn't know what my problem was, nor did they take any interest to figure it out.
I hate to say it but I think the thing to do is get as far away from those docs who don't understand, cause they probably won't ever understand. I paid out of pocket for many years for pain controll as I wasn't getting help from my HMO. Disgusting. I was really bad off. Even if you can find someone outside of your insurance to write a really strong letter to the right docs can make a huge difference. Sometimes that's all it takes. I think this is a fairly common thing and something I just won't stand for anymore.
Years later, they are finally treating me...but I went through hell and back getting them to treat me. I think I get treated now because I am able to stick up for myself now and I get in their face when they pretend something isn't wrong. If you don't feel well enough to advocate for yourself, try to get a friend or family involved. I'm sorry your going through this. I went through it for a long time and now I will just get in their face if they do that to me. I can't deal with it anymore. Hugs.
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Chemically sensitive disc/Annular tears, DDD, mild bulging, facet arthritus
Dancing accident in 96. tried PT, acupuncture, pilates, pain mgmt. nothing worked. Epidurals, facet blocks, caudal blocks, discogram. Opiates for ten years, oral prednisone, toradol inj. & more.
Two level spinal fusion with BMS, cages, hardware. due to bone density problems from chemotherapy, they had to go in front and back. Surgery Nov. 6, 2010. So far no regrets.
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