Mainly I am looking for experts in thoracic spine surgery here in the states that accept major insurance carriers. I will most probably be using Mark's services, however if you have read my other posts, you know that I have pretty much been bled dry. I have very limited resources left and I have to be as sure as I can before I use them. As it is I will be relying on my ability to convince my insurance to pay for Germany if that is the course of action. I already have a few ideas that I am working on.
I have gone on and on about wishing I could have found this site or gone with Dr. B from the beginning when I had the money to do so, but I have come to terms that until this surgery I didn't truly know what was wrong with me. It still doesn't excuse the constant misdiagnosis, but there was no way I could have known and I need to accept that. It is hard.
As far as the ADCT, unless I win the lottery, I am not even going to consider the option. Also I still need further testing to diagnose which discs are causing the problem. I will be asking for a CT myelogram (which I have not had) of the thoracic and cervical spine and then for a discogram (which I have been offered but refused). I am not scared of the pain from the cervical area, but I don't think I could bear the thoracic pain as it causes heart palpitations, trouble breathing, and constant unrelenting panic.
Thanks for the input. I have a lot to think about.
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Chiari 1 malformation - successful surgery 1-22-09
C5-6 herniation (extrusion) with moderate central canal stenosis and bilateral foraminal stenosis.
Prodisc-C @ C5-6 surgery on 5/28/09
VATS thoracic fusion @ T3-4 and T6-7 on 9/11/09
Fusion w/cage @ C7-T1 on 11/12/09
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